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International Rare Diseases Research Consortium (IRDiRC) is a 30 Government Agency in the Public Health industry, founded 2011, headquartered in Paris, Île-de-France 75014, FR.
The International Rare Diseases Research Consortium (IRDiRC) operates as a global collaborative initiative within the public health sector, headquartered in Paris, Île-de-France. Established in 2011 through a partnership between the European Commission and the US National Institutes of Health, the organization focuses on advancing research to address the challenges posed by rare diseases. The consortium brings together diverse stakeholders to coordinate efforts and accelerate scientific discovery in this specialized field.
The primary objective of the consortium is to fulfill a specific vision for the global community of patients. This goal involves enabling every individual living with a rare disease to secure an accurate diagnosis, appropriate care, and access to available therapies within one year of seeking medical attention. By fostering international cooperation, IRDiRC aims to streamline the research landscape and improve outcomes for those affected by these conditions. The organization's work centers on strategic alignment and shared resources to make significant progress in the diagnosis and treatment of rare diseases worldwide.
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